This Could Become Frustrating

I am picky about what doctors I go to. My PCP (primary care physician) understands that and respects my wishes. I check various ratings and see who got good reviews from patients. Most specialists in central Florida have about 10-12 reviews: 10 five-star and 1 one-star is normal for specialists.  When a specialist recommended a radiology oncologist with no five-star and the one-star said "This is a great doctor - if you want to die."  Well, I figured we wouldn't be a good match. My PCP honored that and told me to find one I would be comfortable with. That was my mission today. 

Today's success was scheduling an appointment with the hematology oncologist. Her photo looks like a high school cheerleader - pretty, young and blonde with long hair. But she had great reviews from both my PCP and patients. Unfortunately, her first appointment is September 18th. I'd really like to get this show on the road. 

Since the hepatologist wants Y-90 treatment, I need to find a radiology oncologist who does that procedure and takes my insurance. I called 7 oncology clinics - most have multiple oncologists.  Not one does Y-90. I called two hospitals to see if they had Y-90 trained physicians. I hope they call me back tomorrow.  I encourage myself that after I get my team aligned, that I shouldn't have to do any more physician shopping. I am looking forward to that day.

If curious, here's a 2 minute video of Y-90 treatment:  
https://www.youtube.com/watch?v=8sA3sSjOoD0 

Today was a good day. The doctor started me on an anti-acid. I was a little worried about taking it since I don't have digestive discomfort. He felt I needed it so the acid in my digestive track won't harm the esophogal varices and cause them to rupture with the chance of bleeding to death since I have low platelets. I will get another surgery on my esophogas when the oncologist feels it is safe.

I hung around the house, took a long nap, watched movies,did no housework, and am still in the jammies I woke up wearing this morning and will sleep in tonight. Tomorrow is a work day, so I should be rested. I'm grateful I've learned to be gentle with myself and listen to what my body needs; yet still push myself for important things: work and going to Friday cancer support group and earring making.